Paul D. Tonko tweeted the following:
"Signed into law by President Biden in December, my bill is already at work improving access to life-saving treatments for families like the Goetzs and their loved ones. My deepest thanks to Melissa and all the dedicated advocates who have filled my voice in this critical effort."Read on Twitter
Here are other recent tweets from Paul D. Tonko:
"Today, Im proud to stand with them to celebrate passage of the HEART Act, which will accelerate the development and deployment of treatments for rare diseases by directly involving doctors, scientists, and families like theirs in the FDAs treatment review process."Read on Twitter
"When I met Melissa Goetz, I was inspired by her courage and her fight to raise awareness and find treatment for her daughter Giulianas rare genetic condition. With their story in mind, I set out to deliver legislation to bring hope to families like theirs nationwide."Read on Twitter
"Proud to see the City of Schenectady recognized as EV City of the Year by @ev_association!Looking forward to continuing my work with Mayor @McCarthySchdy to maintain our Capital Regions place as a national leader in our efforts to cut emissions and expand EV use nationwide. twitter.com/wnyt/status/16"Read on Twitter